T turns TWO!

My baby is TWO! How in the world did that happen? I had an easier time accepting him turning 1, than I have 2. I love birthdays, and have loved having a kid to make feel extra special on his day! T woke up to the house all ready and decorated for his day.

Since his birthday was on a Wednesday, both Mike and I had to work. So we meet up with my parents, who babysit T for us, for birthday lunch at Rumbi.

Later that night papa and grandma J came over to tell him Happy Birthday, and then that night as I put him to sleep I sang Happy Birthday to him.

We had his party on Saturday night, a Pirate party! We had all of our families over, our friends the Walkers, Wards, and Bakers. T is blessed to be loved by so many. We had ice cream sundaes and sugar cookie bar instead of cake.

Jake and the Neverland Pirates.

We asked that no gifts we brought, and instead donations be made to our service project in honor of T. However, we all knew that the grandparents wouldn't listen. T was truly spoiled, as were Mike and I since he received two LARGE packages of diapers as part of his gifts!

Happy Birthday big boy, I can't believe you are 2! We love you bubba!!!!

T's first wheelchair

Our big boy is getting even bigger! T's wheelchair arrived about a month ago, and we are loving it!!

He has been really enjoying it, and loves being eye level with everyone!!

It has been great to have!!

Sick baby T

We thought we had managed to sneak past the sickness this winter with T. Not so. Last Monday when I went to give T his 5am medication I noticed that he was burning up. Since he has been teething I wasn't to shocked, and just gave him some Tylenol and went back to bed. He slept in that morning, but when he did wake up I noticed that the fever was still raging. 

Even with constant medication his fever stayed at 103+ for several days. Then the throw up started.

 

The fever and throw up continued for 3 days or so, with no remorse. 

We went to the doctor to have him checked for Influenza, which thankfully came back negative.

After 4 days of this, the fever finally started to break. And then this came....

 

Back to the doctor we went, the results of the rash...Roseola.

Roseola is a rash that can presents itself after a high fever. It tends to be slightly painful, and spreads everywhere. It's a nightmare. 

Finally we are 6 days with this sickness, the rash is gone as is the vomit and fever.

Our T is pretty much back to his happy self, to which I am most grateful.

Sick babies aren't fun, for anyone.

T update

 

We went to PCMC back at the first part of December, for some follow up checks.

We saw Genetics, and Comprehensive Care Clinic. Both were great appointments, and even though we didn't leave knowing much more than we did before, it was nice to talk with the Doctors and have all our questions answered.

Genetics did some blood work and a urine test, to further us along on some genetic testing we are currently doing. The blood work came back with some high levels, which didn't mean anything to me, but I guess it lets the Genetic Doctors know a little more the direction we need to go. We will be seeing a metabolic specialist in January to get more in depth with our testing.

The Comp care clinic is a clinic of several different doctors, that you are apart of if you see more than 3 specialists at PCMC, and have a life long illness. These dr.'s were great! I even was given their personal work e-mails, and their direct lines...talk about amazing! They switched up his medications slightly, they removed one and increased another. They also want to get him AFO's, which are splints for his legs. As well as a stander, which will help him learn to hold his own weight. This doesn't mean that he will ever be able to stand alone, but if he's not able to have his hips hold his own weight before he's 3 then the chances of his hips growing out of socket increase. 

We also have had him fitted and are pre authorizing a wheelchair for T to be able to be apart of everyday life a little more. Exciting things are happening, and knock on wood T is doing great these days and has stayed healthy for quite a while! This couldn't be better, and we truly know how blessed we are for his health!

18 month pictures.

All pictures by the talented Jenny Skeen.

Instagrammin'

post surgery

helping mom menu plan.

Happy Veterans day!

national premie awareness day.

He didn't want Grandma Jex to go home.

shopping with Mom, Grandma, and Aunt Morgan in Utah.

Thanksgiving morning sleep-in.

No shave November.

Swallow study #3.

Best way to start the Christmas season.

Love work parties!

18 month picture preview.

Happy 5th Anniversary!

Mothers lounge Sunday school for us.

Tree is up, and ready for Christmas!