Saturday, May 23, 2015

Comprehensive care appointment

FINALLY we have a plan in place for this baby! We saw comprehensive Care, Dr. D, in February. He sat at talked/consulted with us for 3 hours today! That's amazing for any doctor, let alone a doctor at Primary Children's. I'm so beyond thrilled that we were able to get in with him. He has set into motion several new things for T, and has several more ideas on how to best help him. Our biggest things we will be doing now are Botox in T's legs and an increase in his Baclophen medication. I pray that things start to help T out, it's so hard to watch him be so miserable!!!!